We found out on January 12th Creed has RPE65. That is the best news yet.
We have applied to go for a gene replacement study in either Iowa or Philly.
Creed and I would be gone for six months and he would continue going for testing once a year until he is 18.


Ted, Creed and I had our first interview on Monday for Healthy Living magazine. Creed was not wanting to show off any of his good behavior.

The tee shirts are selling so fast. I was trying to set up Pay Pal for everyone BUT I am just not that good with computers. 

Thank you all for supporting us through this journey. I am so excited for what the future holds.