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Tuesday, February 21, 2012

Today was a hard day

Each day is beginning to drag. The what if's are killing me. Today Creed has had a lot of falls, tons of eye rubbing and so much frustration. That brings me to the what if stage, if we don't get picked for this study what will happen with Creeds vision. When he realize he is loosing his sight. Tomorrow will be better, he will make it through. It's just been a tough day

Saturday, February 11, 2012


We are counting down the WEEKS I can not wait to get the call from either Iowa or Philly. My bags are packed. Were ready to go.

Thursday, February 9, 2012

The Forever Fix, dedicated to the children of gene therapy, is a celebration of science, medicine, parent activism, and most important of all, hope.

On a bright September Sunday in 2008, 8-year-old Corey Haas walked up the pathway to the Philadelphia zoo holding his parents' hands, looked up, and screamed. It was the first time he'd seen the sun.

Four days earlier, Corey had undergone gene therapy for hereditary blindness at Children's Hospital of Philadelphia. An eye surgeon had gently placed billions of viruses bearing healing genes just beneath the rods and cones of Corey's left eye. Now, at the zoo, seeing the sun hurt.




Friday, February 3, 2012

Florida Hospital Waterman mission project


TODAY I SPOKE WITH AN AMAZING WOMEN WHO OFFERED TO PUT CREED'S CAUSE FLYERS IN THE RACE BAGS, THIS IS HER RACE. IT'S FOR A VERY GOOD CAUSE. PLEASE CHECK IT OUT.



Fleet Feet Orlando Sponsored Running Events

Fleet Feet Sports sponsors many local charities, school events and organizational races.


  Please follow the links at right to learn more about upcoming Timing sponsored events.


 

7:30AM

Beneficiary
All the proceeds from this 5k will go towards the 2012 Florida Hospital Waterman mission project and trip to Ethiopia. Some of our team members will work in the Summit Clinic. Other team members will help where needed at the Learning Village, an elementary school located outside Addis Ababa, in Kalaala, Ethiopia.
See why we’re excited about this mission team project on their website .
Race Schedule
Sunday, February 19, 2012
6:30am: Race day registration opens
7:30am: 5K (chip timed)
8:30am: Free Kids Run
Registration
- Online: closes February 16, 2012
- Mail (check or cash only): complete the form
- At Fleet Feet Sports (check or cash only): 303 E. Altamonte Dr - Altamonte Springs
Entry Fee
Entry Fees are non refundable.
- Youth 10 thru 17: $15
- Adults 18 and over: $20
- Day of Race: $25
- Kids Fun Run - 100 yard: Free
Location and Parking
Wooten Park - 100 E Ruby St. - Tavares, FL 32778.
From Orlando: North on 441, pass Florida Hospital Waterman in Tavares, shortly after that go left onto N. St. Clair Abrams Avenue (traffic light at turn), road ends at Wooten Park. Parking is on side streets and parking lots near park.
Course Information
See the map of the course. The Kids Run is a few hundreds yards.
All kids need to be registered on race morning and parents or guardians need to sign a waiver.