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Wednesday, March 20, 2013

Seeking sight through research

After waiting 16 months to hear, Creed has been accepted into a research study. He has passed a number of tests at the University of Iowa, where the research study will take place. for final acceptance he must make it through six different mazes. Three with the left eye covered, three with the right eye covered. He also has to pass a field of vision test. We invite you of course to FIRST OFF, sign up for the race and then enjoy an article about Gordon Creed Pettit and his journey to see. CLICK HERE TO SIGN UP for Creed's Cause Race — — CLICK HERE TO READ THE ARTICLE


Please REGISTER for Creed's Cause 5k Race by CLICKING HERE

Let's make this another successful year to raise research funds

to find a cure for Leber's Congenital Amaurosis, 

which causes blindness in children

THANK YOU!


Friday, February 1, 2013

IOWA and Creed's Cause 2013

We made it!!!! Creed and I have been invited to a baseline visit in Iowa. We leave this Sunday. I am so excited. Creed is the yougest child in the study. The basline visit will be two days. Creed will have blood work done, Eye exams and a Maze walk in the dim light.

We will then come home for 3-4 weeks then if all goes well we will be back at the end of March for another visit. Creed could have a gene replacement in April or May of 2013 or February 2014.

CREEDS CAUSE IS ON MAY 4TH 2013
TAVARES, FL
The link is on the Blog. I am so excited for this race.
We are also looking for Silent Auction items.

Please email me if you'd like to donate or help out on that day.
sarahsaintpierre@yahoo.com

Friday, May 25, 2012

I am please to announce the amount we raised for Creed's Cause Foundation.
The 5k was a huge success, thank you all for coming out and supporting us.

With Sponsorships, Silent auction and Runners we raised $14,500 dollars!!!!
That is way more then I expected for a first year.

Next years race will be on May 4th and I really hope to double this amount.
Thank you all for helping, together we will help fight LCA.

-Sarah

Friday, April 27, 2012

SILENT AUCTION







We are gearing up for the race/walk, which is a week from tomorrow, May 5, 2012. Have received an incredible amount of awesome Silent Auction items, so be sure to be ready with credit cards, debit cards, cash or checks (local to Central Florida). Will be sending out a PDF of auction items by mid-week. You won't believe the variety of TOP-END ITEMS including: GOLF -  Art - Restaurants - Eyewear - Antique Mantle Clock - Mr. Comfort misting system for boat/or canopy, etc - Clothing - jewelry - pottery - window tinting - dog grooming and a week at the kennel - This is just the small list -- wait until you see the big list. Silent auction will be open before the race and end about 30 minutes after the last participant crosses the finish line. We have given you just a tiny taste of all we have in store. SO RACE ON OVER TO THE SILENT AUCTION BEFORE PARTICIPATING IN CREED'S CAUSE 5k.