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Friday, May 25, 2012

I am please to announce the amount we raised for Creed's Cause Foundation.
The 5k was a huge success, thank you all for coming out and supporting us.

With Sponsorships, Silent auction and Runners we raised $14,500 dollars!!!!
That is way more then I expected for a first year.

Next years race will be on May 4th and I really hope to double this amount.
Thank you all for helping, together we will help fight LCA.

-Sarah

Friday, April 27, 2012

SILENT AUCTION







We are gearing up for the race/walk, which is a week from tomorrow, May 5, 2012. Have received an incredible amount of awesome Silent Auction items, so be sure to be ready with credit cards, debit cards, cash or checks (local to Central Florida). Will be sending out a PDF of auction items by mid-week. You won't believe the variety of TOP-END ITEMS including: GOLF -  Art - Restaurants - Eyewear - Antique Mantle Clock - Mr. Comfort misting system for boat/or canopy, etc - Clothing - jewelry - pottery - window tinting - dog grooming and a week at the kennel - This is just the small list -- wait until you see the big list. Silent auction will be open before the race and end about 30 minutes after the last participant crosses the finish line. We have given you just a tiny taste of all we have in store. SO RACE ON OVER TO THE SILENT AUCTION BEFORE PARTICIPATING IN CREED'S CAUSE 5k.

Sunday, March 11, 2012

Bryan Bulaga, #75, Offensive Tackle of the Green Bay Packers, proudly wears his Creed's Cause T-shirt, standing in support of a little guy who is a true fighter and very determined Packers' fan. GO CREED GO!!!


Creed welcomes Dad home with a concert

Creed will spend hours on the piano and loves listening to all kinds of music, especially classical, on his iPad. After his Daddy got home from being out of town, he treated him to a surprise concert, playing Twinkle, Twinkle Little Star.

Monday, March 5, 2012

Insurance denied Creeds doctor at UF. Just more proof that great things come at a cost.

Tuesday, February 21, 2012

Today was a hard day

Each day is beginning to drag. The what if's are killing me. Today Creed has had a lot of falls, tons of eye rubbing and so much frustration. That brings me to the what if stage, if we don't get picked for this study what will happen with Creeds vision. When he realize he is loosing his sight. Tomorrow will be better, he will make it through. It's just been a tough day

Saturday, February 11, 2012


We are counting down the WEEKS I can not wait to get the call from either Iowa or Philly. My bags are packed. Were ready to go.

Thursday, February 9, 2012

The Forever Fix, dedicated to the children of gene therapy, is a celebration of science, medicine, parent activism, and most important of all, hope.

On a bright September Sunday in 2008, 8-year-old Corey Haas walked up the pathway to the Philadelphia zoo holding his parents' hands, looked up, and screamed. It was the first time he'd seen the sun.

Four days earlier, Corey had undergone gene therapy for hereditary blindness at Children's Hospital of Philadelphia. An eye surgeon had gently placed billions of viruses bearing healing genes just beneath the rods and cones of Corey's left eye. Now, at the zoo, seeing the sun hurt.




Friday, February 3, 2012

Florida Hospital Waterman mission project


TODAY I SPOKE WITH AN AMAZING WOMEN WHO OFFERED TO PUT CREED'S CAUSE FLYERS IN THE RACE BAGS, THIS IS HER RACE. IT'S FOR A VERY GOOD CAUSE. PLEASE CHECK IT OUT.



Fleet Feet Orlando Sponsored Running Events

Fleet Feet Sports sponsors many local charities, school events and organizational races.


  Please follow the links at right to learn more about upcoming Timing sponsored events.


 

7:30AM

Beneficiary
All the proceeds from this 5k will go towards the 2012 Florida Hospital Waterman mission project and trip to Ethiopia. Some of our team members will work in the Summit Clinic. Other team members will help where needed at the Learning Village, an elementary school located outside Addis Ababa, in Kalaala, Ethiopia.
See why we’re excited about this mission team project on their website .
Race Schedule
Sunday, February 19, 2012
6:30am: Race day registration opens
7:30am: 5K (chip timed)
8:30am: Free Kids Run
Registration
- Online: closes February 16, 2012
- Mail (check or cash only): complete the form
- At Fleet Feet Sports (check or cash only): 303 E. Altamonte Dr - Altamonte Springs
Entry Fee
Entry Fees are non refundable.
- Youth 10 thru 17: $15
- Adults 18 and over: $20
- Day of Race: $25
- Kids Fun Run - 100 yard: Free
Location and Parking
Wooten Park - 100 E Ruby St. - Tavares, FL 32778.
From Orlando: North on 441, pass Florida Hospital Waterman in Tavares, shortly after that go left onto N. St. Clair Abrams Avenue (traffic light at turn), road ends at Wooten Park. Parking is on side streets and parking lots near park.
Course Information
See the map of the course. The Kids Run is a few hundreds yards.
All kids need to be registered on race morning and parents or guardians need to sign a waiver.

Thursday, January 26, 2012

Alex wearing her Creed's Cause tee.

Creed's Cause tees have hit the streets.  I am so excited to see the pictures of people wearing the new tees.

We found out on January 12th Creed has RPE65. That is the best news yet.
We have applied to go for a gene replacement study in either Iowa or Philly.
Creed and I would be gone for six months and he would continue going for testing once a year until he is 18.


Ted, Creed and I had our first interview on Monday for Healthy Living magazine. Creed was not wanting to show off any of his good behavior.

The tee shirts are selling so fast. I was trying to set up Pay Pal for everyone BUT I am just not that good with computers. 

Thank you all for supporting us through this journey. I am so excited for what the future holds.










Wednesday, January 18, 2012

Thursday, January 5, 2012

Follow Creed's Cause on Facebook under LCA,Creed's Cause or Sarah St.Pierre Pettit