Story in the Orlando Sentinel on Creed
Wednesday, March 20, 2013
Please REGISTER for Creed's Cause 5k Race by CLICKING HERELet's make this another successful year to raise research fundsto find a cure for Leber's Congenital Amaurosis,which causes blindness in childrenTHANK YOU! |
Tuesday, February 12, 2013
Creeds Cause
Race is coming up soon.
So much to do. We still need Silent Auction items.
And more racers.
http://triflorida.com/Events/Running/CreedsCause5K/tabid/393/Default.aspx
http://triflorida.com/Events/Running/CreedsCause5K/tabid/393/Default.aspx
So much to do. We still need Silent Auction items.
And more racers.
http://triflorida.com/Events/Running/CreedsCause5K/tabid/393/Default.aspx
http://triflorida.com/Events/Running/CreedsCause5K/tabid/393/Default.aspx
Friday, February 1, 2013
IOWA and Creed's Cause 2013
We made it!!!! Creed and I have been invited to a baseline visit in Iowa. We leave this Sunday. I am so excited. Creed is the yougest child in the study. The basline visit will be two days. Creed will have blood work done, Eye exams and a Maze walk in the dim light.
We will then come home for 3-4 weeks then if all goes well we will be back at the end of March for another visit. Creed could have a gene replacement in April or May of 2013 or February 2014.
CREEDS CAUSE IS ON MAY 4TH 2013
TAVARES, FL
The link is on the Blog. I am so excited for this race.
We are also looking for Silent Auction items.
Please email me if you'd like to donate or help out on that day.
sarahsaintpierre@yahoo.com
We will then come home for 3-4 weeks then if all goes well we will be back at the end of March for another visit. Creed could have a gene replacement in April or May of 2013 or February 2014.
CREEDS CAUSE IS ON MAY 4TH 2013
TAVARES, FL
The link is on the Blog. I am so excited for this race.
We are also looking for Silent Auction items.
Please email me if you'd like to donate or help out on that day.
sarahsaintpierre@yahoo.com
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